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 Post subject: Poems I wrote about my M.E./CFS life
PostPosted: November 26th, 2008, 2:07 pm 
Elf
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I’m starting to forget
what normal used to be like—
getting used to what normal is now.

Normal is
naps
and no energy
and frequent rests.

Normal was
able to do almost anything
as soon as it was thought.

Normal is
forgetting
and slow brain
and being unable to think.

Normal was
learning quickly
and being able to make decisions.

Normal is
frustration
and anger
and fear.




Tired,
always tired,
No matter how much you sleep.

You still think,
"If only I could sleep longer
I’d be rested."

Then you remember
it doesn’t work that way anymore.

Naps—which are necessary—
(and you can only rebel so much, and you pay for it later)
only let you feel more rested than before.

Never fully rested,
full of energy.

It’s hard to describe what this is like.

Physically, there are muscle aches, or joint pain, or muscle cramps,
lasting a breath, or several, or even a day.
It can be mild, or achy, or piercing pain—
perhaps moving from place to place with each breath,
never completely stopping.

Some things last several days, maybe even a month,
that seems to be a cycle—one month.
Things you experience can go away,
and then later return.

And those are just the physical symptoms, only some of them.

Faulty memory, faulty brain.
Unable to think clearly—
pieces of thoughts, conversations, lost.

Unable to remember thoughts, words, deeds; even from a minute ago.

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 Post subject:
PostPosted: November 28th, 2008, 9:27 pm 
Warden of the Knight
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wow... that's sad. :( Nicely wrote but sad.

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 Post subject:
PostPosted: December 1st, 2008, 5:08 pm 
Elf
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Its very sad but definitely true.

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 Post subject:
PostPosted: December 1st, 2008, 10:34 pm 
Warden of the Knight
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Well, you write nice poetry. :)

I would be interested to see what kind of things you write on happy subjects.

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 Post subject:
PostPosted: December 8th, 2008, 6:06 pm 
Elf
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Ill try.

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